Modelling the Impact of Caregiving Burden on Psychological Distress with the Mediating Role of Social Support among Mothers of Children with Autism Spectrum Disorder

Sepideh  Shishehfar; Leila  Kashani Vahid; Samira Vakili; Mohammadparsa  Azizi

doi:10.61838/kman.jarac.6.2.21

Authors

Sepideh Shishehfar PhD student, Department of Psychology and Education of Exceptional Children, Science and Research Branch, Islamic Azad University, Tehran, Iran

Leila Kashani Vahid Assistant Professor, Department of Psychology, Science and Research Branch, Islamic Azad University, Tehran, Iran

Samira Vakili * Assistant Professor, Department of Psychology and Education of Exceptional Children, Science and Research Branch, Islamic Azad University, Tehran, Iran Vakili7sa@gmail.com

Mohammadparsa Azizi Assistant Professor, Department of Psychology, Science and Research Branch, Islamic Azad University, Tehran, Iran

https://doi.org/10.61838/kman.jarac.6.2.21

Keywords:

Psychological distress, social support, Autism spectrum disorder, Caregiving burden

Abstract

Objective: The study aims to investigate the relationship between caregiving burden, social support, and psychological distress among mothers of children with autism spectrum disorder (ASD). It specifically examines the mediating role of social support in the linkage between caregiving burden and psychological distress.

Methods and Materials: This cross-sectional study utilized Structural Equation Modeling (SEM) to analyze data from a sample of mothers of children with ASD. Key variables included caregiving burden, perceived social support, and psychological distress measured with standardized tools. The statistical analysis was conducted using SPSS-26 for preliminary data handling and descriptive statistics, while AMOS-22 was utilized for the SEM analysis to explore the relationships between caregiving burden, perceived social support, and psychological distress among the participants.

Findings: Results indicated that caregiving burden significantly predicts psychological distress (β = 0.19, p < 0.001), and social support plays a crucial mediating role in this relationship. Higher levels of perceived social support were found to significantly mitigate the impact of caregiving burden on psychological distress (β = -0.37 for social support to distress, and β = -0.43 for burden to support, p < 0.001 for both). The model fit indices (CFI = 0.95, TLI = 0.94, RMSEA = 0.06) confirmed a good fit for the SEM model.

Conclusion: The study shows the significant impact of caregiving burden on psychological distress among mothers of children with ASD. More importantly, it indicates the critical role of social support as a buffer in this relationship. These findings advocate for enhanced social support systems and interventions to alleviate the psychological distress experienced by these mothers, thereby improving their overall well-being.