Exploring the Lived Experience of Families with a Cancer Patient in the Face of COVID-19: A Phenomenological Study with an Emphasis on the Role of Women
Keywords:
Cancer, COVID-19, Lived Experience, Family, Social Support, Mental HealthAbstract
Objective: The objective of the present study was to explore the lived experience of families with a cancer patient in the context of COVID-19, with an emphasis on the role of women.
Methods and Materials: This qualitative study was conducted using a thematic analysis approach. The participants included 13 family members who were selected through purposive theoretical sampling. Data collection was carried out through semi-structured interviews with participants at Imam Hospital in Bojnord. The data were analyzed using the Corbin and Strauss method.
Findings: Stress resulting from the illness of a family member and the concerns of the family emerged as the contextual factors influencing the study. The primary concern of participants was the stress associated with the illness of their loved one. The main coping strategies adopted by the families to manage the stress included confronting problems, dealing with unpleasant emotions, addressing unresolved needs, seeking hope, battling the challenges of the illness, spiritual engagement, striving for support, normalization, optimal caregiving, and managing the illness. Stress reduction aimed at returning to a normal life emerged as the central category of the study, connecting all other categories.
Conclusion: Families of cancer patients during the COVID-19 pandemic faced significant psychological, social, and economic challenges. Nevertheless, they employed strategies such as maintaining morale, self-reliance, and enhancing spirituality to cope with the crisis. Therefore, the provision of social, financial, and psychological support by the government and relevant institutions—particularly during times of crisis—can help improve these families’ quality of life and reduce their psychological burden.
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Alharthi, H., Youssef, H. A. M., Thobaity, A. A., Yassen, R. W., Felemban, E. M., Almalki, M., & Al‐Moteri, M. (2023). Lessons Learned From the COVID-19 Outbreak as Experienced by ICU Nurses: Manifest Qualitative Content Analysis. Healthcare, 11(9), 1269. https://doi.org/10.3390/healthcare11091269
Burton, L., Goss, S., Sivell, S., Selman, L., & Harrop, E. (2024). “I Have Never Felt So Alone and Vulnerable” – A Qualitative Study of Bereaved People’s Experiences of End-of-Life Cancer Care During the Covid-19 Pandemic. https://doi.org/10.21203/rs.3.rs-4268511/v1
Cardoso, A. F., Pires, M. G., Cioga, E., Abalroado, I., Santos, D., Duque, F. M., Loureiro, R., Felizardo, H., Fernandes, A. M., Silva, R., Ventura, F., Santana, E., Cardoso, D., & Loureiro, L. (2023). Experiences With Remote Communication in Adult Intensive Care Units During the COVID-19 Pandemic: A Systematic Review Protocol. JBI Evidence Synthesis. https://doi.org/10.11124/jbies-23-00002
Dikobe, J. M., Moagi, M. M., & Sehularo, L. A. (2023). The Live Experiences of Nurses Caring for Patients Diagnosed With COVID-19 Infection in the North West Province. The Open Public Health Journal, 16(1). https://doi.org/10.2174/18749445-v16-e230320-2022-183
Fahed, G., Fares, A. H., Ghosn, A., Greige, A., Hebbo, E., Naja, K., Moukarzel, P., Haddad, S., Finianos, A., Honein‐AbouHaidar, G., & Akl, E. A. (2023). The Lived Experiences of Patients With Cancer During the COVID-19 Pandemic: A Qualitative Study. Ecancermedicalscience, 17. https://doi.org/10.3332/ecancer.2023.1598
Ferrara, G., Aguina, M., Mirochnick, E., Wiphatphumiprates, P., Moreira, D. C., Sniderman, E., Villegas, C., Kaye, E. C., Ragab, I., Maliti, B., Naidu, G., Gassant, P. Y., Arce, D., Arora, R. S., Alcasabas, A. P., Raza, M. R., Velasco, P., Kambugu, J., Vinitsky, A., . . . Graetz, D. E. (2023). Communication Transforms the Impact of the COVID‐19 Pandemic on Children With Cancer and Their Families. Cancer Medicine, 12(11), 12813-12826. https://doi.org/10.1002/cam4.5950
Gautama, M. S. N., Wahyuni, S., Huda, M., Khasanah, I. N., Hikmawati, U., Aminanto, S., Sahureka, S. P., & Rizal, O. J. T. (2023). Sebuah Kajian Literatur Tentang Pengalaman Pasien Kanker Dalam Menghadapi Pandemi Covid-19. Ners Jurnal Keperawatan, 19(1), 34-45. https://doi.org/10.25077/njk.v19i1.55
Gilbert, R., Bates, C. R., Khetawat, D., Gillette, M. L. D., & Moore, R. M. (2023). Risk and Resilient Functioning of Families of Children With Cancer During the COVID-19 Pandemic. International journal of environmental research and public health, 20(6), 5208. https://doi.org/10.3390/ijerph20065208
Hyeon, Y. H., & Moon, K. J. (2024). Living Experiences of Older Patients With Cancer Amid the COVID-19 Pandemic: A Phenomenological Study. Journal of Korean Gerontological Nursing, 26(1), 54-65. https://doi.org/10.17079/jkgn.2023.00150
Jiu, C. K., Novarianda, E., Usman, U., Hartono, H., Wuriani, W., Purdani, K. S., & Afriyanto, A. (2023). The Experience of Family Caregiver's N Caring for Post-Stroke Patients at Home During the Pandemic Covid-19. International Journal of Multidisciplinary Research and Analysis, 06(02). https://doi.org/10.47191/ijmra/v6-i2-09
King‐Dowling, S., Hammer, S. N., Faust, H. L., Madden, R., Drake, S., Ahmed, A., Albee, M., Deatrick, J. A., Daniel, L. C., Pai, A. L. H., Freyer, D. R., Psihogios, A. M., Barakat, L. P., & Schwartz, L. A. (2023). Psychosocial Impact of COVID‐19 on Caregivers and Adolescents and Young Adult Survivors of Childhood Cancer. Pediatric Blood & Cancer, 70(6). https://doi.org/10.1002/pbc.30291
Lebni, J. Y., Irandoost, S. F., Safari, H., Xosravi, T., Ahmadi, S., Soofizad, G., Azar, F. E. F., Hoseini, A. S., & Mehedi, N. (2022). Lived Experiences and Challenges of the Families of COVID-19 Victims: A Qualitative Phenomenological Study in Tehran, Iran. Inquiry the Journal of Health Care Organization Provision and Financing, 59. https://doi.org/10.1177/00469580221081405
Ma, H., Zhao, T., Ma, Y., Yuen, J., Ho, K. Y., Yung, J. Y. K., Lam, K. K. W., & Christensen, M. (2023). Family Caregivers' Lived Experience of Caring for Hospitalised Patients With Cancer During the COVID‐19 Lockdown: A Descriptive Phenomenological Study. Journal of clinical nursing, 32(19-20), 7509-7518. https://doi.org/10.1111/jocn.16817
Mirlashari, J., Ebrahimpour, F., & Salisu, W. J. (2021). War on Two Fronts: Experience of Children With Cancer and Their Family During COVID-19 Pandemic in Iran. Journal of Pediatric Nursing, 57, 25-31. https://doi.org/10.1016/j.pedn.2020.10.024
Mwiinga-Kalusopa, V., Mukelabai, M., Namukonda-Ntinga, S., Chitundu-Mutambo, K., Mutati, C., Hamwiibu, V., Mwanahamuntu, M. D., Milumbe-Msiska, F., Kaira, I., Kwaleyela, M., & Zimba, F. (2022). COVID-19 Pandemic: Psychosocial Distress and Social Burdens Experienced by Cancer Patients at Cancer Diseases Hospital, Lusaka, Zambia. Open Journal of Nursing, 12(09), 559-570. https://doi.org/10.4236/ojn.2022.129038
Pourmoradian, S., Roudsari, A. H., Khoshnazar, T. A. K., & Milani-Bonab, A. (2025). The Lived Experience of Iranian Adults From Coronavirus Disease 2019 (COVID-19)—A Qualitative Study. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1362708
Rahimi, T., Dastyar, N., & Rafati, F. (2021). Experiences of Family Caregivers of Patients With COVID-19. BMC Family Practice, 22(1). https://doi.org/10.1186/s12875-021-01489-7
Robinson, K. R., Jensen, G. A., Gierach, M., McClellan, C., Wolles, B., Bartelt, S., & Hodge, J. (2022). The Lived Experience of Frontline Nurses: COVID‐19 in Rural America. Nursing Forum, 57(4), 640-649. https://doi.org/10.1111/nuf.12727
Rodriguez, G. M., Kumar, D., & Patel, M. I. (2023). “I Have Constant Fear”: A National Qualitative Study on the Impact of COVID-19 on Cancer Care and Potential Solutions to Improve the Cancer Care Experience During the COVID-19 Pandemic. Jco Oncology Practice, 19(7), 427-434. https://doi.org/10.1200/op.22.00550
Sharbafchi, M. R., Mousavi, S. M., Sheikhani, G., Keyvanara, M., & Ani, S. (2025). Caring Challenges of Family Caregivers of Cancer Patients in the COVID-19 Pandemic: A Qualitative Study. Iranian Journal of Nursing and Midwifery Research, 30(2), 175-181. https://doi.org/10.4103/ijnmr.ijnmr_125_23
Taylor, S., Stanworth, M., Eastwood, C., Gomes, F., Khatoon, B., & Yorke, J. (2022). Understanding the Experiences of Lung Cancer Patients During the COVID-19 Pandemic: A Qualitative Interview Study. Quality of Life Research, 32(3), 701-711. https://doi.org/10.1007/s11136-022-03283-z
Wang, Y., Huang, Y., Ma, X., Wusiman, D., Zhang, X., & Bi, N. (2022). The Impact of the COVID-19 Pandemic on Palliative Care Practice: A Survey of Clinical Oncologists. Frontiers in Public Health, 10. https://doi.org/10.3389/fpubh.2022.1020937
Weiss, C., Johnson‐Koenke, R., Sousa, K. H., Ulrich, C. M., & Hirschman, K. B. (2023). Unveiling Tensions: Caregiving for Older Adults With Cancer in the Covid-19 Era. Innovation in Aging, 7(Supplement_1), 1147-1148. https://doi.org/10.1093/geroni/igad104.3683
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Copyright (c) 2025 Farshad Samadi (Corresponding Author); Maedeh Khoshakhlagh, Ali Nazari, Elyar Mousapour Shahi (Author)

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